Clinical Genetics Society

Closing Date: 14/02/2020

Location: Spalding and/or home-based

Haemochromatosis UK is a charity dedicated to supporting people affected by haemochromatosis, a genetic condition that leads to toxic iron overload. We work to raise public awareness, stimulate research, and educate healthcare professionals. To learn more please visit http://haemochromatosis.org.uk/what-we-do. We are seeking to recruit a part-time or full-time Genetic Counsellor to be based at our Spalding office (PE11) with opportunities for remote working. We will also consider exceptional home-based applicants able to work at least 1 day per week from our Spalding headquarters. We provide telephone helpline support to people affected by genetic haemochromatosis (HFE genetic mutation). We also run a vibrant education programme to train healthcare professionals across primary and secondary care in haemochromatosis diagnosis, care pathways and management. Key responsibilities This is a diverse and varied role, combining : • Developing and delivering training materials (online seminars, face-to-face training, printed materials etc) on the genetics of haemochromatosis • Providing helpline support (by telephone, email and video conference) to families affected by genetic haemochromatosis to help them understand and manage their condition • Providing support to clinical trial participants, to help them understand the implications of a diagnosis of genetic haemochromatosis • Representing our charity at NHS PPV events, clinician conferences and the All-Party Parliamentary Group on GH, to advance healthcare professionals and policy makers’ understanding of the condition In this exciting role, you will be the charity’s lead on the genetics of haemochromatosis and a key contributor to the development of our charitable programmes. For more details, please refer to the attached role description.

For further information please contact:

N McClements
Email: careers@huk.org.uk
Website: https://haemochromatosis.org.uk/

Henrith Business Centre, 3 Enterprise Way
Spalding
Lincolnshire
PE11 3YR