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NIHR UK Rare Genetic Disease Research Consortium


Agreement Access Policy 14 April 2014

Under this agreement residual material from the blood, saliva and previously collected tissue collected in studies and stored in bio banks, can be shared for the benefit of research into rare genetic disease. The local processes of each biobank with stored material would need to be applied.

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  • consent and confidentiality - briefing document

    posted 2nd October 2017  |  0 Comments

    This briefing document was commissioned by the BSGM to highlight areas of the 2011 consent and confidentiality in genetic practice guidance that may need revision. It also outlines where practice has changed significantly since the last version and recognises that genomic medicine now extends well beyond the specialty of clinical genetics

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